river in iceland with a bridge over it and snow on the ground

Lying on the cold hard ground

I’m going through and rescuing some old drafts that got lost in the draft box, so hopefully for the next couple weeks I’ll be posting more frequently. Some of the details might be a bit out of date, though. Also, some of these posts might be a little bit silly and maybe not my best writing.

I like to lie on the ground. Almost all of the day almost all of my life, I would just rather be curled up in a ball. And I mean this in a positive way–I just really love lying down. I’m enjoying myself a lot when I am lying on the ground. Also, I really hate standing around (often talking) when you could be sitting–or even better just lying on the ground. I know eye contact is more important to a lot of people, so I guess that isn’t why people don’t have conversations lying on the ground all the time.

Maybe not everywhere I am, but a lot of places. Even if it is somewhere I am enjoying myself, I know that it would be more enjoyable if I could be lying on the ground. Except, there are reasons not to lie on the ground:

  1. A lot of time the ground is dirty or unsafe. Such as crossing the street.
  2. Sometimes I would get in the way of people
  3. It is not something you are supposed to do. For some reason, even sitting on the ground seems weird to some people.

So, I generally know I am not supposed to lie on the ground.

But when I get drunk, I care a lot less about this so I lie on the ground a lot.

And that is actually how I realized I always want to lie on the ground.

 

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Criss-Cross Applesauce

I’m going through and rescuing some old drafts that got lost in the draft box, so hopefully for the next couple weeks I’ll be posting more frequently. Some of the details might be a bit out of date, though.

I don’t sit still.


At least not as a general rule.

As a general rule, when I sit in chairs, I swing my feet. I kick things
(accidentally) and make unfortunately loud noises in class. Sitting
formally in a quiet room is a struggle, because if I am sitting properly,
feet on the ground, maybe ankles crossed, I have to spend so much focus on
being quiet and not distracting.

Which I don’t mind, really, because the tapping of feet and the clanging of
hitting chairs and the resulting table bouncing is an awful thing. I hate
when other people do it. It is distracting. It is painful. I understand
that there are situations I need to sit quietly.

But if I can sit on my feet, or criss-cross, with legs folded and wedged
into place, then I can sit quietly for hours (assuming I am also doing
something else, like typing or listening or reading or learning). Because
then my legs are comfortably wedged into place. I don’t have to worry about
forgetting that they are there, because they can’t go anywhere. It
generally requires conscious effort for me to take my feet out of
criss-cross. It is something I seldom do while I am paying attention to
something else.

But of course, not everywhere you can sit like this. Most of my clothes are
criss-cross appropriate… it is something I try to keep in mind when I buy
skirts and dresses (I’ve never really seen a pair of pants or shorts that
threaten flashing by sitting criss-cross, or at least not anything that
would fit my other clothes requirements.) Sure, I definitely have a few
skirts and dresses where I have to sit on top of my feet instead of
criss-cross, but I also usually wear shorts under those, so as long as it
isn’t too formal, I can usually get away with sitting criss cross.

The thing that is the real problem, though is desks. Those desks where the
desk and the chair are attached. Those can be difficult to sit criss cross
in. Those I generally have to settle for just sitting on one leg.

The other problem of course, is that sitting criss cross isn’t the formal
and appropriate way to sit at nice events. That isn’t how to sit at formal
dinners or at interviews.

And I have manners very thoroughly well ingrained, with the rules at least.

(I think my mom taught us something along the lines of “I know it is less
comfortable to sit with your feet down but manners don’t make sense they
are just a thing that everyone sticks to and then the other person knows
you are putting in extra effort because you respect them instead of just
being extra comfortable and easy).

P.S. I should write about manners and social expectations sometime.

P.P.S. I’m writing this while sitting very successfully quiet in a library
box working on prelim stuff. I am not the annoying library person. Well—I
am typing furiously, which I actually do get annoyed by other people doing
but that is a relatively quiet thing which I probably just need to get some
headphones to avoid.


For instance, from this P.P.S. I can tell that I wrote this over 4 years ago, since I took my prelims near the beginning of grad school.

Take a deep breath

I remember when I really learned how to handle my emotions. As in, the point when I was able to figure out how not to burst into tears over a stubbed toe. Before, I was prone to bursting into tears at these (relatively) small things.While I would burst into tears at minor injuries, I knew that I shouldn’t be upset. I knew it was a small injury and not a big thing. I knew that it would stop hurting soon. I just couldn’t stop myself from crumpling and crying. But then at some point, it just clicked. I was able to take a deep breath and walk it off. And after a few seconds, the stubbed toe or the skinned knee didn’t hurt any more and I was fine.

Part of the reason I remember this so well is because it definitely didn’t really develop until I was in college.

I still don’t really know why or how this change happened. I just know that all of a sudden, I was able to take that deep breath and pause for a second with a stubbed toe. And really, once you can do that, it makes it hurt so much less.

But before that, every time that someone told me to calm down, it didn’t work. When people told me to take a deep breath, to walk things off, it did not make any sense. I literally could not comprehend what people were saying or how it made any sense. I just didn’t have the tools in my brain to take a breath and make things stop hurting.

Some things just take time. Some things just happen late. Some things will probably never happen.

Shampoo Thief

Here follows an example of my problem solving abilities:

Freshman year of college, my mom and I flew out to my new school and supplied me with all the various things one needs when living in a dorm. I was all set-up and prepared with multiple toothbrushes in case I dropped one and soft blankets because those are the best and notebooks for everything and lots of snacks. However, at some point in the semester, I ran out of shampoo and conditioner, as someone with relatively long and thick hair tends to do on a somewhat frequent basis.

The previous way in my life that this issue was dealt with was going into my parents’ bathroom and getting a new bottle from under the sink. Of course, this was not an option 2,000 miles away. I knew that theoretically people got shampoo by going to the store (although I was not super clear on what type of store sold shampoo besides Costco). But it was a Midwest winter and I was from Southern California. Also, I didn’t know how to get there and the only transportation I would have had was my feet.

So, the only logical answer was to become a shampoo thief until Christmas break, when I could resupply myself with shampoo.

Luckily, in our dorm, people kept their shower things in shower caddies on shelves right outside the shower. I was not brazen enough to grab an entire shower caddy and take it in the shower with me. Someone may have noticed that if I accidentally grabbed theirs. Nothing was labelled (and I didn’t know most of the people on my floor anyway, because faces). I did not have a plan for being confronted with stealing someone’s shampoo or any idea of what would happen if someone (accurately) accused me of that, especially since they would most likely catch me when I was clothed in only a towel, as I usually was immediately prior to showering.

The plan I came up with was much more complicated. I would only shower in the dead of night, when most other people are asleep. Since I lived in a dorm with a lot of other college students who also stayed up late, the dead of night meant at least 3 am. Then, mid-shower, I would sneak out to the shower caddies and grab a handful of shampoo and then dart back into the shower. (Later, I would repeat with conditioner). I would spread out my borrowing, so I wasn’t stealing only one person’s shampoo. I wouldn’t take anything from an almost-empty bottle (or anything that looked overly expensive). Since there is a lot of options of shampoo in the floor of an all-girls dorm, I never really used more than one or two showers worth of shampoo from anyone in the whole semester.

This was not the most comfortable way to shower, running in and out in the cold, in the middle of the night, but it was the only solution I could come up with. It also had the result of making me feel incredibly guilty every time I showered. It also made me rather tired, from staying up late a few nights a week in order to wash my hair.

Asking someone for help or advice literally never occurred to me. I could have asked boyfriend or other friends or my RA, who probably could have also figured out a solution or told me that I could buy shampoo with fake money at the store on campus that was literally visible from my dorm-room window. My mom literally asked me if I was washing my hair every time she called me and who I always answered yes and told the most recent time I had washed my hair (hiding the guilt of my stolen shampoo). If I told her I was running low on shampoo or had run out, I would have gotten more somehow, or at least directions on how to solve the problem.

Instead, you got my deepest darkest secret of freshmen year (I was not full of deep, dark secrets yet at that time in my life): the months I was a thief every time I showered. (Also, now that I’ve actually thought about this story, I find it amusing although I’d likely be just as impractical today).

Autistic Wedding Planning

Image is of an engagement ring with a blue stone. I have doodled around it and wrote the word plan underneath it.
Hi everyone! So there aren’t very many resources for planning a wedding if you are autistic. Like none. Google gives you pretty much nothing. And since I’m actively involved in this, it’s something I’m thinking about. And it was really becoming rather frustrating and leading to general panicky life issues. So I wrote a question/submission thing to a wedding planning website/other life things that I’m a big fan of just in general (like really, though, I like A Practical Wedding and actually was reading it for discussions of life stuff occasionally before I even started thinking about weddings… like years ago). And they also decided to print/answer it. (And also had helpful, specific answers to things I was individually concerned of.
So that’s pretty awesome. Anyway, if you want to read it…

Also, they were super cool in the editing process about changing things they wrote about “a person with autism” to “an autistic person” and also about changing the link for more general autism information from Autism Speaks to ASAN when I brought that up. So added points for that.

Creating my own standards

This is not relevant to this article, but it was one of the earliest images that popped up when I googled the title of this post looking for a good image. And I really do love xkcd, and I didn’t come up with a better image for this, and I prefer to have images in my posts, so I am sticking with it. Because it’s always good to have a bit of fun in there. 

 I’ve been struggling a lot lately, with prelims and lab choosing and moving and a million pieces of life (which is why I haven’t written much in August). Errands and jobs and tasks that require communication and planning and new skill sets. There is the constant low level anxiety about being in a new place right now, which uses up spoons just existing until I get adjusted into life here.

And I’ve been trying to keep up with graduate school and doing my best and trying to make a good impression so that people like me and let me into programs. And maybe I have been trying my hardest and maybe what I have been is good enough.

Or maybe it isn’t. I sort of think that I should be trying harder. Trying to improve myself and be better. There are always things I need to work on.

Today I read this (emphasis mine):

“I feel as though many of our autistic kids can never escape from this idea that they must always be being corrected; must always be being taught; must always be building on skills; must always be attending therapies and classes; must always be being “consistently disciplined”; must always remember every second of every day that they are autistic and that they have so much to learn, so far to go, so much more that they need to be.”

~“Are We Trying To Hard To Teach Our Autistic Children”, Suburban Autistics (Also read the rest of the article, it’s great!)

There are so many things I need to work on. I identify a new area where I struggle when talking with boyfriend and he says “ok, we can work on that”. But if we add up all the things that “we can work on” then I don’t know how I have any time in the day to actual get my work done*. I can’t always be working on not panicking or working on not hiding my face or working on one of the million other things I struggle with that are things that need to be done to be professional and successful and effective at communicating and get things done.

And then I get overwhelmed by the amount of things I have to do and it is a horrible positive feedback loop that just spirals out of control.** And that is no help at all and does not lead to more things getting done.

I have to remember I am the one who is creating the standards for my behavior. I can make them reasonable.

As long as I get by, I am doing ok.

I need to eat. I need to do reasonably well in grad school so that I don’t get kicked out. I need to pay bills and pay rent. I should try and avoid going into debt. As long as I stick to that, I am doing ok. It is fine if I watch a lot of tv. Or if I hide in my room and don’t talk to people. Or if I do talk to people. Or if I don’t exercise. It is all ok. I am surviving.

On days I remember that, I am fine. I am more productive. I am happy. Of course, determining what “reasonably well” means is a whole issue on itself…

~~~~~~~
*They are usually things that I do need to work on, like being able to make appointments or go to the doctor or go to a meeting or such things.
**I really want to say a negative feedback loop, but that is wrong. A negative feedback loop will turn itself off or regulate levels, because it negatively effects itself. A positive feedback loop builds on itself and increases and increases. One biological example of a positive feedback loop is peeing.

Post-meds first thoughts

Right now, things are different. Partially because right now I have to deal with the politics part of science, which I am not a major fan of and which confuses me. But also, (and with what was probably not ending up as the best overall timing), we (doctor +me) discussed it and I got off my antidepressants. Oh, and also, as a heads up here, I am going to briefly mention various things that happened that lead to me being on antidepressants (mostly self-harm and suicidal thoughts).

***Oh, and also brains are weird and do strange things and I certainly don’t understnad them, and this is definitely just personal-me-rambling thoughts. Do whatever makes your brain happy and work. If antidepressants make your brain work, then by all means, keep taking them. I am not trying to say that you should stop taking them or try to stop taking them or that being on them is bad or only a phase or whatever. It is just that for me the side effects are starting to outweigh the benefits again.***

And it has been long enough that I have started to sort out the differences between the weird side effects that happen whenever I get on or off of medications and actually being off of medication. So I am sorting through my life and seeing what I have been up to now that I am *actually* off of meds. I want to stay off of them, if I can. I know they are good and useful and they helped me a lot. I know I needed them. I don’t think I still need them, but I am not positive. I’m sorting it out and working through it and discussing things with people and seeing the results and we are experimenting in how staying off of them is working, and then after a month, we will re-evaluate the decision.

Now that I am off them, everything seems realer. Things are less blunt and less dulled. Things were a lot flatter before. There’s more colors and layers to things. This is generally good. But it also means things can be sharper and things can hurt more. Because when I was on my meds, they were mostly sort of dulled off to the edge. My thoughts and senses and connections faded and separated out more. The world was more blurred, but that also made it softer and safer, and that was what I needed then.

But I like the world with the colors and the layers and the connections. I like how the world is now, how beautiful everything is. I had missed it, and I am glad it is back.

I haven’t noticed anything specifically or abnormally strange in things I am doing or thinking. I’m fine with the general things I know about related-to-depression things. I don’t want to hurt myself or kill myself. I don’t seem to be crying more than the normal amount or at unprompted things.

The only big thing I have noticed is that I think I was less stimmy before. And since I translate my emotions through what I am doing, it confuses me. I am not sure if I am happy or stressed or tired or frustrated. My movements are more and my movements are different. I’m not sure if this is good or bad. So I am a bit confused by this. I’m not sure why I am moving more or moving differently. So I can’t tell how this translates out. It isn’t always bad stimmy, but it certainly is more stimmy.

Stimmy stimmy stimmy stimmy stimmy.

I know I was more manageable on my meds.

But what does manageable mean? I’m not sure what I even mean by it, but I know the word I want is manageable. I don’t know if I meant more manageable for me or more manageable for other people. I just know that word belongs in this description. More manageable for me is good. More manageable for other people… not so good, necessarily.

I know I seemed more normal when I was on them, but I try not to have that be my goal. I try to have my goal to be to be happy and to make the world a slightly better place (or at least not a worse place) and to not hurt other people. And there are some career goals related to science thrown in there as well. But seeming normal is something I try not to have as a goal, because I don’t think it is something really attainable for a prolonged period of time, and I try not to have impossible or unattainable goals.

So that’s where I am at for now. We shall see how things go from here.